Past Editions
Day 1: October 16th, 2024
13:00 – 14:00 – Registration Opening, Lunch & coffee break
14:00 – 15:30 – Opening Plenary – Session 1 – Plenary 1 “Update on regulations” – Salle ORSAY
CNIL : AI Act + Biomedical Research Reference Methodologies EDPB : Updated anonymization guidance OTHER EU Authority
- In France, CNIL has carried out a public consultation to improve its Reference Methodologies on biomedical research. It has also put in place a team dedicated to the use of Artificial Intelligence, a technology now widely used in healthcare and medical research.
- At the EU level, the European Data Protection Board is working on new anonymisation and pseudonymisation guidelines
- Several national authorities are working on updating their regulatory framework to prepare the implementation of the European Health Data Space
Chair
Pierre-Yves Lastic,
EFDPO
Paris, France
Speaker 1
Aurore gaignon
CNIL
Paris, France
Speaker 2
Benedicte Illien
EMA
Amsterdam, Netherland
Speaker 3
Sabine Brosch
Ema, Data analytics
Vienna, Austria
15:30 – 16:00 – Coffee Break
16:00 – 17:30 – Workshops Sessions
16:00 – 17:30 Session 2 – Panel Discussion 1 – International Data Transfers – Salle ORSAY
This panel will be dedicated to exploring the challenges relating to the transfer of health data in general and in particular in the context of scientific research. The session will combine academic and practical considerations on transfer tools and transfer impact assessment.
These are the topics or questions we intend to address:
- The challenges of implementing Standard Contractual Clauses, particularly the famous module 4 processor to Controller and the implications of the recent Dutch DPA decision sanctioning uber.
- The European Commission has (finally) launched an initiative to update Standard Contractual Clauses (SCCs) for the transfer of personal data to third-country controllers and processors under the GDPR. Was it worth the wait?
- The Challenges linked to the frame of data transfer within the complex processing chain of some clinical trials.
- What place for the other data transfer tools and mechanisms such as BCRs ?
- Reliance on Derogations for scientific research. Is it a viable option ?
- Clarifying the purpose of the Transfer Impact Assessment and the implementation of supplementary measures for “problematic” countries.
Chair
Winnie Dongbou
MyData-Trust
Brussels, Belgium
Speaker 1
Sonia Cissé
Linklaters LLP
Paris, France
Speaker 2
Adriana Minovic
DPO, ERGOMED
Serbia
Speaker 3
Teodora Lolava-Spinks
U-gent
Gent, Belgium
16:00 – 17:30 Session 3 – Workshop 1 – Tutorial : Certifications and codes of conduct – Salle Vendôme 5-6
This workshop aims to highlight:
- The practical implications of assessments for compliance with the GDPR and more specific related to privacy and transparency within the different areas of digital health.
- Existing assessment and certification frameworks with focus on AI and Telemedicine
- Feasible and criteria relevant for the DPO in order to harmonise the European assessment frameworks
Chair
Christophe MAES
I-HD
Deinze, Belgium
Speaker 1
Yoanni MATSAKIS
Telemedicine, technologies
Boulogne billancourt, France
Speaker 2
Irène schlunder
TMF eV
Berlin, Germany
Speaker 3
NATHAN LEA
DPO, I-HD
Gent, Belgium
16:00 – 17:30 Session 4 – Workshop 2 – Training & Education – Salle Vendôme 1
This panel discussion will discuss the need for specific training and education for DPO and Privacy Officers working in healthcare and biomedical research:
- What kind of education is needed for DPO and Privacy Officers involved in the processing of personal health data?
- Should health data specific certification frameworks be developed?
- How could an European training program for Health Data Protection look like?
Chair
Marie PENOT
UDPO
Kumhausen, Germany
Speaker 1
Barry Moult
Director at BJM IG Privacy Ltd
Long Melford, United Kingdom
Speaker 2
Barbara Tomasi
MydataTrust, DPO
Mons, Belgium
18:00 – 19:30 – Networking Cocktail
Day 1: October 17th, 2024
9:00 – 10:30 – Session 5 – Plenary 2 – Artifical Intelligence in healthcare and research – Salle ORSAY
This session aims to highlight and discuss the implications and fast changing developments across AI technology and regulations:
- For healthcare practitioners using assistive and autonomous AI to deliver care and the role of practitioner autonomy and decision-making
- For patient access to quality care and the autonomy, and the rising anxiety against data bias
- For researchers to understand regulatory position to reuse data and the risks of working with data analytics, where data bias may exist, and incomplete data may result in AI skewing results.
Chair
NATHAN LEA
CEO, I-HD
Gent, Belgium
Speaker 1
Lucrezia, Frillici
Unibo
Bologne, Italie
Speaker 2
Magali FEYS
ACONTRARIO
Belgium
Speaker 3
Gastone Castellani
ITALY
Speaker 4
JULIE POWER
Patient Contact and Policy Officer, Vasculitis Ireland Awareness
Ireland
10:30 – 11:00 – Coffee Break
11:00 – 12:30 Session 8 – Panel Discussion – Standardization of Impact Assessments (Interplay between, DPIA, AI ACT, GDPR and MDR) and a common assessment framework for multiple regulations: CTR, MDR, AIA and GDPR – Salle ORSAY
Data Protection Impact Assessments are a mandatory part of clinical trials and represent a significant workload for project teams. Moreover, they will need frequently to integrate the assessment of the Artificial Intelligence systems used for the processing of personal health data.
- In this workshop we will show how these assessments can be standardized to reduce workload and improve quality.
- We will present some of the tools that can be used in this process.
- The integration of Artificial Intelligence systems assessments will be discussed
Chair
Anne BAHR
Sanofi
Paris, France
Speaker 1
Alessandra CINCOTTI
SANOFI
Paris, France
Speaker 2
Benedicte Ilien
EMA
Amsterdam, Pays-Bas
Speaker 3
Nathalie POUPAERT
Counsuel, Fieldfisher
Brussel, Belgium
11:00 – 12:30 Session 13 – Tuto/WS/PD – Cybersecurity with health apps – Salle Vendôme 5-6
1. Challenge the Existing Paradigm :
Expose the vulnerabilities of current health apps, questioning the very foundation of trust and security in digital health ecosystems.
2. Hack the Future :
Explore radical, forward-thinking solutions to protect health data in an era of quantum computing, decentralized networks, and AI-driven health apps.
3. Weaponize Data for Good :
Understand how personal health data, when secured, can become a powerful tool for personalized medicine and public health — but in the wrong hands, a weapon against individuals and society.
4. Embrace the Chaos: Cyber Resilience:
Prepare for the inevitable breaches and attacks. Learn how to design health apps that not only survive but thrive in a hostile cybersecurity landscape.
5. Anarchy in the API:
Dive into the future of API security, anticipating the next wave of threats in interconnected health systems. Discover how a radical overhaul in API design could redefine security standards for all health apps.
6.The Punk Manifesto for Health Data Security:
Draft a futuristic, rebellious manifesto on how health apps should evolve to protect privacy, build trust, and create systems that empower patients, even as technological landscapes shift unpredictably.
Chair
Marco Alexandre SAIAS
Ambar Partners
Lisboa, Portugal
Speaker 1
Johne LAVENDY
MANAGING DIRECTOR, CRECO CYBERSECURITY
Paris, France
Speaker 2
Corine PLOURDE
DIRECTRICE PEDAGOGIQUE
Paris, France
13:30 – 15:00 – Workshops Sessions
11:00 – 12:30
Session 10 – Panel Discussion 4 – Anomymization, pseudonymization, synthetic data (Legal) – Salle Vendôme 1
Chair
Pierre-Yves LASTIC
EFDPO
Paris, France
Speaker 1
MAGALI FEYS
ACONTRARIO
GENT, BELGIQUE
Speaker 2
NATHAN LEA
CEO, I-HD
Gent, Belgium
12:30 – 13:30 – Lunch
13:30 – 15:00 – Session 9 – Panel Discussion 3 – Ethics, AI & personal data in health care – Salle ORSAY
Chair
Anastasia Negrouk
MyDataTrust
Brussels, Belgium
Speaker 1
Sofia palmieri
U-Gent
GENT, BELGIQUE
Speaker 2
Marguerite BRAC de la PERRIERE
Tech & Data , Fieldfisher
Paris, France
Speaker 2
Muna, Khogali
I-HD
Gent, Belgium
13:30 – 15:00 Session 11 – Work Shop 4 – Anomymization, pseudonymizatio, synthetic data (Technical) – Salle Vendôme 5-6
In the era of big data, protecting personal information has never been more critical. But how effective are anonymization processes in reality? Are datasets truly anonymous, or just pseudonymous? And most importantly, can anonymized data still provide value to our industry? Join our expert panel to dive into these pressing questions and more. This session promises to spark a lively and thought-provoking debate on the efficiency and utility of anonymization techniques. Don’t miss the chance to engage with leaders who are shaping the future of Data Privacy in our Industry.
Chair
Xavier GOBERT
MYDATATRUST
Brussels, Belgium
Speaker 1
Erik Boucher de Crevecoeur
CNIL
Paris, France
Speaker 2
Oliver Breillacq
Fondateur d’Octopize
Nantes, France
15:00 – 15:30 – Coffee Break12:30 – 13:30 – Lunch
15:30 – 17:00 – Sessions
Session 12 – European Health Data Space – Salle ORSAY
This session aims to highlight the measures within the EHDS Regulation that are expected to impact DPOs, including:
- issues healthcare organisations will need robust processes to address, particularly regarding patient information, consent and opt-out mechanisms;
- matters that regional and national health authorities will need to coordinate through healthcare providers and communicate to the public;
- and considerations that data users, including those involved in clinical research, will need to take into account.
Chair
Dipak Kalra
I-HD
Gent, Belgium
Speaker 1
Milana Trucl
EU PATIENT ASSOCIATION
Amsterdam, Pays-bas
Speaker 2
Déborah Mascalzoni
Associate Professeur
Sweden, Italy
17:00 – 18:15 Session – Oral Communications – Salle ORSAY
17:00-17:15 Sergio Contrino
- DATA INTEROPERABILITY IN THE VACCELERATE PROJECT: WHY IT MATTERS AND MAKING IT MEANINGFUL Salma Malik PharmB, PhD, Zoi Dorothea Pana, MD, MSc, PhD, Christos D. Argyropoulos , MSci, MSc, PhD, Sophia C. Themistocleous, MSc, Alan Macken ,MSc, Olena Valdenmaiier ,MSc, Frank Scheckenbach ,PhD, Elena Bardach, ,MSC, Andrea Pfeiffer, MS, Katherine Loens, PhD, Jordi Ochando ,PhD, Oliver A. Cornely, MD, PhD , Jacques Demotes , MBA, MD, PhD, Sergio Contrino, ING, Gerd Felder1, BS, MS.
17:15-17:30 Veronica Mino
- THE SECONDARY USE OF GENETIC DATA: BUILDING UP ON THE OPINION OF THE CONFERENCE OF INDEPENDENT FEDERAL AND STATE DATA PROTECTION SUPERVISORY AUTHORITIES (DSK) V. Miño-Vásquez, PhD
17:30-17:45 Chawla Kartik
- Navigating Muddy Data-Streams: PETs and EU Data Protection Laws in Secondary Health Data Use Kartik Chawla, Dayana Spagnuelo, Simon Dalmolen
17:45-18:00 Tatiana Revenco
- Health Data Secondary Use: Navigating the Balance Between Innovation and Data Protection
18:00-18:15 Ashley PITCHER
- Patient-Mediated approach to sourcing secondary data for research in Europe Ashley B Pitcher, DPhil and Elena Koshkina, PhD
Chair
Dipak Kalra
I-HD
Gent, Belgium
Chair
Pierre-Yves LASTIC
EFDPO
Paris, France
Speaker 1
Sergio Contrino
Head of Data Projects
ECRIN
Paris, France
Speaker 2
Veronica Mino
First PRIVACY
Bremen, GERMANY
Speaker 3
Kartik Chawla
TNO
Eindhoven, Netherlands
Speaker 4
Tatiana Revenco
DPO, Healthcar & Life Sciences
Belgium
Speaker 5
Ashley PITCHER
Data Strategy, Access and Enablement, IQVIA
Copenhagen, Denmark
18:15 – 19:00 Closing Plenary – Session 16 – Transparency – Salle ORSAY
Chair
Dipak Kalra
I-HD
Gent, Belgium
Speaker 1
Anastasia Negrouk
MyDataTrust
Brussels, Belgium
Speaker 2
Pierre-Yves LASTIC
EFDPO
Paris, France
Speaker 2
NATHAN LEA
CEO, I-HD
Gent, Belgium
19:00 – 20:00 – Networking Cocktail followed by Cocktail & Dinner
Day 1: October 15th, 2025
13:00 – 14:00 – Registration Opening, Lunch & coffee break
14:00 – 14:15 – Congress Opening by Pierre-Yves Lastic – General Secretary of EFDPO and EHDPC Chairman
This session explores the key data protection challenges DPOs must address when AI systems are adopted in healthcare. It covers procurement checkpoints, contractual safeguards, data access from EHRs, cross-border processing, legal bases for data use, security requirements, monitoring and breach management, as well as transparency and explainability for clinicians and patients.
Chair
Pierre-Yves Lastic,
EFDPO
Paris, France
14:15 – 16:00 – Opening Plenary Session : Anonymization and pseudonymization in practice
- Anonymization and pseudonymization case law. Patrice Navarro (Clifford Chance)
- The EDPB 2025 pseudonymisation guidance. Giuseppe D’Acquisto (Italian Data Protection Authority)
Speaker 1
Patrice NAVARRO
Clifford Chance
Paris, France
Speaker 2
Giuseppe d’Acquisto
Italian Data Protection Authority
Roma, Italy
15:15 – 16:00 : Panel discussion
« Navigating EDPB Guidance, Health Data Realities, and Case Law »
Chair
Winnie DONGBOU
MyDataTrust
Paris, France
Panelist 1
Gwendal LEGRAND
EDPB
Paris, France
Panelist 2
Patrice NAVARRO
Clifford Chance
Paris, France
Panelist 3
Michael Will
Bavarian Data Protection Authority
Munchen, Germany
Panelist 4
Marta Siemaszko
Global Operations Director, Data Privacy Digital and AI
Warsaw, Poland
Panelist 5
Giuseppe d’Acquisto
Italian Data Protection Authority
Roma, Italy
16:00 – 16:30 – COFFEE BREAK AND NETWORKING
16:30 – 18:00 – Plenary 2 – How will EHDS Health Data Access Bodies anonymise and pseudonymise and synthetize data sets?
The EHDS Regulation extends the legal rights under GDPR to authorise Health Data Access Bodies, appointed by each EU country, with powers to perform anonymisation and pseudinymisation of health data sets in order to make them available for research or other secondary uses. This means that they will be legally permitted to anonymise data sets e.g. from a hospital, that have NOT been de-identified at source. Even if this is permitted under extended GDPR, healthcare providers might need assurance of the capability of HDABs to perform this to a suitable high standard and to give immunity to the healthcare data source for any data breaches or compaints that arise.
Chair
Dipak Kalra
I-HD
Gent, Belgium
Speaker
Daniela will
IAPP – International
Bavières, Germany
Speaker
Petra Wilson
Health Connect Partners
Oxford, United Kingdom
Speaker
Yacine Daquin
Head of Legal
French HDH
Paris, France
Speaker 2
Maud DECRAENE
Responsable /Manager for Pôle LEGATO
Juridique, réglementaire & politique données, DPDP
Legal Affairs, regulatory and data policy, DPO
IHU ICAN
Oxford, United Kingdom
18:00 – 19:00 – ORAL COMMUNICATIONS
18h00 – 18h10 : Navigating Muddy Data-Streams: PETs and EU Data Protection Laws in Secondary Health Data Use
Speaker
Kartik Chawla
TNO
Eindhoven, Netherlands
Speaker
Dayana SPAGNUELO
TNO
Eindhoven, Netherlands
Speaker
Simon DALMOLEN
CJIB
Groningue, NETHERLANDS
18h10 – 18h20 : Recommendations for Assessing Re-Identification Risks in the secondary use of Health Data
Jonathan MAURER
PHD Analytical &
Clinical Chemistry
Neuchaâtel, Suisse
Sabrina OESTERLE
ASU
Arizona, USA
Speaker
Jean-Louis RAISARO
CHUV
Lausanne, Suisse
K Kalt
PHD
Speaker
Michaela EGLI
PHD
Biel, Switzerland
Speaker
Judit KISS BLIND
SPHN
Bale, Suisse
Speaker
Jan ARMIDA
SIB
Lausanne, Suisse
TR Geiger
PHD
18h20 – 18h30 : Health Data as a weapon : Addressing Group-Level Risks in an era of Expanded secondary use
Speaker
Shachi PANDIT
ROCHE
London, UK
18h30 – 18h40 : AI-POWERED Anonymization and pseudonymization to enhance healthcare data Security
Speaker
Baka DIOP
CIO
USA
18H40 – 18h50 : From raw to synthetic : Enabling Privacy Enhancing data sharing in the european health data space
Chair
Dipak Kalra
I-HD
Gent, Belgium
Chair
Pierre-Yves Lastic,
EFDPO
Paris, France
Speaker
Kartik Chawla
TNO
Eindhoven, Netherlands
Speaker
Dayana SPAGNUELO
TNO
Eindhoven, Netherlands
Speaker
Simon DALMOLEN
CJIB
Groningue, NETHERLANDS
Speaker
Shachi PANDIT
ROCHE
London, UK
Jonathan MAURER
PHD Analytical &
Clinical Chemistry
Neuchaâtel, Suisse
Sabrina OESTERLE
ASU
Arizona, USA
Speaker
Jean-Louis RAISARO
CHUV
Lausanne, Suisse
Speaker
Laurewce CARTER
DPO CENTRE
Letchworth, Royaune Uni
Speaker
Michaela EGLI
PHD
Biel, Switzerland
Speaker
Jan ARMIDA
SIB
Lausanne, Suisse
Speaker
Judit KISS BLIND
SPHN
Bale, Suisse
Speaker
Baka DIOP
CIO
USA
19:15 – 20:30 – COCKTAIL AND NETWORKING at CLIFFORD CHANCE Headquater
1 rue d’astorg 75008 Paris
Shuttle BUS leaving at 19H15 in front the musée de la marine.
Day 2: October 16th, 2025
08:30 – 9:00 Registration Opening & coffee break
09:00 – 10:00 – Plenary 03 – Data Altruism – Secondary use
This session explores the key data protection challenges DPOs must address when AI systems are adopted in healthcare. It covers procurement checkpoints, contractual safeguards, data access from EHRs, cross-border processing, legal bases for data use, security requirements, monitoring and breach management, as well as transparency and explainability for clinicians and patients.
Chair
Kristof van Quathem
Lawyer – Of Counsel
Brussels, BELGIUM
Speaker 1
Maria Christofidou
U-GENT – ECC
Gent, Belgium
Speaker 2
Anne Bahr
R&D Privacy Officer – Sanofi
Paris, France
10:00 – 10:30 – Coffee Break
10:30 – 11:30 – Workshop 1- Oral Communications
10h30-10h40 Blockchain for secure secondary use of health data : Legal and regulatory framework analysis
C. Gauthier-Maxence, PhD – CNRS, PSE; C. Milcent, Pr & Researcher– CNRS, PSE
10h40-10h50 Horizon Scanning : Changes to secondary uses of health data in the eu and uk
LW Carter, PhD, DPO
10h50 – 11h00 Patient-mediated approach to sourcing secondary data for research in europe
Authors: AB Pitcher, DPhil and E Koshkina, PhD
11h00 – 11h10 : Can the data Protection officer also serve as AI officer
Natahlie Poupaert
11h10 – 11h20 : Nationally harmonized contractual framework for the secondary use of health data in mutli-center projects in swizerland
J Kiss Blinda, M Egli, PhDa, J Maurer, PhD a
Chair
Dipak Kalra
I-HD
Gent, Belgium
Chair
Pierre-Yves Lastic
General Secretary of EFDPO and EHDPC Chairman
Paris, France
Speaker 1
Céline GAUTHIER-MAXENCE
PHD Digital Law
Paris, FRANCE
Speaker 2
Carine MILCENT
CNRS
Paris, France
Speaker 3
Nathalie POUPAERT
Counsuel, Fieldfisher
Brussel, Belgium
Speaker 4
Mélanie EGLI
PHD
United Kingdom
Speaker 5
Jonathan MAURER
PHD Analytical &
Clinical Chemistry
Neuchaâtel, Suisse
Speaker 6
Laurewce CARTER
DPO CENTRE
Letchworth, Royaune Uni
10:30 – 11:30 – Health research data and international transfers by DPA
Chair
Rafal Yeisen
Stavanger Hospital
Stavanger, Norvège
Speaker 1
Anna Kristin Ulfarsdottir
Norwegian Data Protection
Authority
Speaker 2
Michael Will
Bavarian Data Protection Authority
Munchen, Germany
Speaker 3
MD, Ahmed Alhatlan
Leader, Board Member, Digital Transformation, Healthcare expert, CPHIMS, CHIM, Casemix, International Data Governance, Public Health.
11:40 – 12:40 – Workshop 3 – GDPR compliance through certification and codes of conduc
Chair
DR Sebastien Ziegler
Chairman of Europriv
acy International Board of Experts
Speaker 1
Yoanni MATSAKIS
Telemedicine, technologies
Boulogne billancourt, France
Speaker 2
Christophe MAES
I-HD
Deinze, Belgium
Speaker 3
Kristof Van Quathem
Lawyer – Of Counsel
Brussel, Belgium
11:40 – 12:40 – Workshop 4 – Innovative clinical trial designs utilising EHR data
Chair
Mats SUNDGREN
I-HD
Gent, BELGIUM
Speaker 1
Felix Nensa
Univ Hospital
Essen, Germany
Speaker 2
Nadir Ammour
Sanofi
Paris, France
Speaker 3
Sara Burge
Cambridge University Hospital
Cambridge, UK
12:40 – 14:00 – Lunch Break
14:00 – 15:00 – Workshop 5 – How to Apply GDPR in Practice: Two Casse-Tête Case Studies
- Hands-on experience with two real-life case studies.
- Collaborative development of GDPR compliance strategies.
- Practical application of data protection principles in real-world scenarios.
Chair
Anastasia Negrouk
MyDataTrust
Brussels, Belgium
14:00 – 15:00 – Workshop 6 – Implementation of a uniform DPIA
Chair
NATHAN LEA
CEO, I-HD
Brussels, Belgium
Speaker 1
Peter Singleton
I-HD
UK
Speaker 2
Jan Willem BOITEN
Senior Program Manager
Lygature NL
Nimègue, Gueldre, Netherlands
Speaker 3
Guillaume Coquette
Data Protection Manager
My Data Trust
Paris, France
Speaker 4
Falk Bohm
Vice President, Chief Privacy Officer, Global
Hamburg, Germany
15:00 – 15:30 COFFEE BREAK
15:30 – 16:30 – Workshop 7 – Data Protection in Telemedicine
Speaker
Daniela will
IAPP – International
Bavières, Germany
Speaker
Doris Martinell
General Counsel
Teladoc Health
Barcelona, Spain
15:30 – 16:30 – Workshop 8 – Synthetic Data for Data Protection Officers (DPOs): Understanding Risks, Benefits, and Innovations
Chair
NATHAN LEA
CEO, I-HD
Gent, Belgium
Speaker
Dr JEAN LOUIS FRAYSSE
Silica
Co-fondateur de BOTdesign; CO-Président de SILICA; Vice-Président SoFia Santé
Nice, France
Speaker
Winnie Dongbou Wamba
Senior Data Protection Lawyer & DPO Certified
MyDataTrust
Mons, Belgium
16:45 – 18:00 Plenary 4 – Adopting AI systems within a healthcare organisation
Chair
Dipak Kalra
I-HD
Gent, Belgium
Speaker 1
Adriana Minovic
Group Director of Data Protection (DPO) and AI Compliance
Belgrade, Serbia
Speaker 2
Sofia PALMIERI
Healthcare AI policy
Compliancy officer of ihD and Post-Doctoral Fellow in Medicine, Artificial Intelligence, and the Law at the Petrie-Flom Center for Health Law Policy, Biotechnology, and Bioethics at Harvard Law School
Speaker 3
Tom Goffin
Professor of Health Law, Ghent University
Lubbeek,
Flemish Region, Belgium
16:45 – 18:00 Plenary 4 – Adopting AI systems within a healthcare organisation
20:30 – 22:00 – DINER at ANDIA
Day 3: October 17th, 2025
08:30 – 9:00 Registration Opening & coffee break
09:00 – 10:30 – Genetic Data : Risk through genetic data
This session on Sharing of Genetic Data for Research will explore the delicate balance between scientific advancement, ethical considerations, and data protection regulations. Genetic data holds immense potential for medical breakthroughs, personalized medicine, and disease prevention, yet its highly sensitive nature raises privacy, consent, and security concerns. Key questions include: How can it be shared responsibly while protecting individuals from misuse or discrimination? The discussion will address regulatory frameworks such as GDPR, EHDS, and national privacy frameworks, as well as the role of biobanks, commercial entities, and open science initiatives. Ultimately, the session will seek to outline best practices for ethical data sharing, ensuring that research benefits society while upholding individual rights and trust in biomedical innovation.
Chair
Veronica Mino
First PRIVACY
Bremen, GERMANY
Speaker 1
Erik Boucher de Crevecoeur
CNIL
Paris, France
Speaker 2
Yvan Malgorn
Retired Colonel of Gendarmerie
Lille, France
Speaker 3
Tania Palmariellodiviney
Data protection Officer
UK
10:30 – 11:00 – COFFEE BREAK & NETWORKING
11:00 – 12:30 – Closing Plenary – DPO, Privacy and genetic DATA
Chair
Nathalie POUPAERT
Counsuel, Fieldfisher
Brussel, Belgium
Speaker 1
Anastasia Negrouk
MyDataTrust
Brussels, Belgium
Speaker 2
Peter Blenkinsop
Partner at Faegre Drinker Biddle & Reath LLP
Washington DC, USA
Speaker 4
Xiao Liu
EORTC
Woluwe-Saint-Lambert, Belgium
Speaker 3
Sarah Sandre
PhD
Business developer – Réferente juridique et partenariats
Domaine Relation Utilisateurs et Pilotage Projet
Pôle Innovation & Données
Direction des Services Numériques
Campus Picpus – APHP
Paris, France
12:30 – 13:00 – END OF CONGRESS & COFFEE BREAK